Cian's Kicking Cancer

Cian's Kicking Cancer

About my blog

This blog will be updated by my mummy and daddy to let everyone know how I'm doing and tell you all about the fantastic support that I am receiving from lots of very caring charities.

We are extremely grateful to our family, friends and supporters for fundraising and sending us messages of encouragement.

We also have a dedicated Facebook Page.


Hi-solation!

Daily updatePosted by Daddy Case Thu, March 03, 2016 21:54:23
We were expecting a dip in fortunes at some point, and now it is happened!

Cian started his chemotherapy on Tuesday, which in simple terms is being administered over 48 hours. This means that Cian is constantly attached to a drip.

It makes life on the ward tricky as Cian is not so mobile. The drip pumps all have a battery to allow for movement, but it is never that simple... especially when there is also a wheelchair involved.

This meant that all physio would be done in Cian's room and any trips to the playroom had to be carefully managed.

Wednesday wasn't too exciting, but this was boosted by a visit by Uncle G in the evening. But Cian wasn't quite himself, which could be easily attributed to the chemo and his not eating... but was it?!

I was on duty Wednesday night, and true to form Cian managed to be sick at 10pm and bring up his NG tube smiley

Then all through the night Cian was waking up complaining of a bad tummy and headaches, so he woke up Thursday morning feeling a little grotty and tired.

This was noticed by all the staff and patients as Cian is normally the bubbly one, and the ill and quiet Cian is now a distant memory for most.

First main job of the day was the re-insertion of an NG tube.

It was another experience that everyone would like to forget... made worse by the fact that it made Cian sick. But at least being sick settled Cian's tummy for a while.

Then came the other symptoms... Cian looks pale... increase in Cian's pulse rate.... temperature rising to over 39 degrees... extreme tiredness!

This was a clear indication that this was not down to the chemo, but a bug that has made it's way through almost everyone on the ward... kids; staff; parents.. the lot!

We thought Cian had got away with it as nobody new had shown symptoms for the last few days, although most of the ward was still in isolation.

But unfortunately, it seems to have hit. Cian is being fed antibiotics and fluids intravenously and has slept more than he has been awake... which is actually as boring as it is worrying. But something is working as his temperature has decreased.

We are in isolation, so further restrictions are made on our movement and extra precautions taken for anyone who enters our room.

This will also probably mean that any chance of Cian coming home this weekend has diminished.

Most people who have had this bug have become symptom free within a day or two so I am remeaining hopeful that he will be feeling better soon.

Lots of people often comment on how well Cian looks in his photos. This is mainly because I omit any that makes him look ill. No to make light of either situation, but he does remind me of the photos taken of the Russian, Alexander Litvinenko who was poisoned by plutonium.



So I also include this picture that was taken a few days ago of Cian wearing his new penguin hat. Occasionally people bring in hats that have been made specifically to hand to children undergoing chemotherapy and the associated hair loss.


I will probably not get an opportunity to blog until after the weekend, because if Cian is ok then I will be taking Dylan and Bethany away for a couple of days to attend a family occasion.

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