Cian's Kicking Cancer

Cian's Kicking Cancer

About my blog

This blog will be updated by my mummy and daddy to let everyone know how I'm doing and tell you all about the fantastic support that I am receiving from lots of very caring charities.

We are extremely grateful to our family, friends and supporters for fundraising and sending us messages of encouragement.

We also have a dedicated Facebook Page.

Welcome to our blog

IntroPosted by Daddy Case Tue, December 15, 2015 15:54:44

Thank you for taking the time to visit our blog.

On the 20th November 2015, Cian started complaining about tummy pains in the form of stomach cramps and pains / itching at the top of his legs.

As he was just recovering from a cold we, as well as the medical professionals (GP and A&E) put this down to probable abdominal migraines.

But as the days went on and the pain got worse, we (but especially mummy) got increasingly concerned and wouldn’t accept that there was nothing more medically wrong with our baby. As a result, he was admitted to the Royal Glamorgan Hospital on 25th November for investigations to take place. It wasn’t until the 27th November when Cian began to lose the use of his legs that it was recognised that these symptoms presented a much more serious issue.

Cian was subjected to a number of tests and scans, until much to our horror and disbelief, a Magnetic Resonance Imaging (MRI) scan uncovered a tumour that was growing on his spine.

He was immediately rushed to the University Hospital of Wales Hospital (UHW), where he underwent an emergency operation to safely remove as much of the tumour as possible. Although we were told that the procedure went as smoothly as these kind of invasive surgeries could, there is always unavoidable damage and trauma to the spinal cord, on which the tumour was situated.

This meant that Cian had lost all feeling from below the waist; and although he has regained some sensation and twitching movements in his feet and legs, the consultants are somewhat pessimistic over his long term mobility.

He was then admitted to Noah’s Ark Children’s Hospital, newly opened annex to UHW that has great facilities to look after sick and injured children.

On the 7th December we were delivered the devastating news that the tumour is cancerous, although we had enough hints and indications to prepare us for that diagnosis. This was made worse by being informed that ‘seeds’ of the cancer had impregnated the brain.

As the cancer has affected his entire Central Nervous System, Cian is in constant pain from headaches; and nerve pains in the back, tummy and legs. This is being controlled as much as possible by a concoction of different medication.

We have been told to expect 6-8 months of intensive chemotherapy and radiotherapy to improve Cian’s symptoms and hopefully rid him of the disease.

The form of cancer Cian has is Atypical Teratoid Rhabdoid Tumour (AT/RT). This is a rare and extremely aggressive condition commonly diagnosed in childhood. I will leave it to you guys to conduct further research if you want, as it doesn’t make very pleasant reading!

We are using this blog to update everyone on Cian’s progress, as this is the easiest way to communicate to as many people as possible, as we are overwhelmed by the interest shown by family, friends and strangers alike.

Any charitable / fundraising activities will also be posted here, as so many of you have wanted to get involved and contribute in lots of different ways. We will then also be able to tell you how any monies raised will be distributed / spent.

Hopefully, this blog will also raise the awareness of this form of cancer and encourage future research that could possibly result in new treatments or cures.

For this blog to be successful, we encourage you to leave sensible and appropriate comments; and although we won’t have the time to respond to every submission we will take the time to read them all.

The Cases

  • Comments(13)

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Posted by Andrea Osborne Thu, December 17, 2015 10:59:58

Sending you all a huge cwtch,love and strength.Cousin Andrea xx

Posted by Raimund Thu, December 17, 2015 08:28:29

Wow, this kind of diagnosis is a blow for every person involved. I am amazed by the brave and open way you all are handling this. Good luck in this battle.

Posted by Tegan Wed, December 16, 2015 06:37:03

Stay strong believe in your self little man and I love you so so much Cian❤️ Love Tegan your big cousin xxxxxx

Posted by Keira and family Wed, December 16, 2015 06:27:59

Get well soon cian. You're a fighter and a brave little boy. Lots of love keira, andrew and the girls xx

Posted by Toni-Marie Tue, December 15, 2015 22:30:19

Hi Rich and Lorraine so sorry to hear Cian is so poorly we are all sending our love and praying for you, stay strong with love and hugs to you all. Toni, David and Alana xxxxx

Posted by Susan Tue, December 15, 2015 21:57:03

You are all in our thoughts. I pray for Cian every day. You are both so brave and strong to have to deal with this. Lots of love Susan Jason Skye and Cara xxxxx

Posted by Jen Tue, December 15, 2015 19:22:10

Our thoughts and our love are with you all. Jen, Laura and Isla xxx

Posted by Kathryn Tue, December 15, 2015 18:22:23

As always the Case family's strength is putting us all to shame. Love and thoughts to you all. X

Posted by Maureen Daly Tue, December 15, 2015 18:05:33

You are all in my thoughts and prayers. What inspirations you all are to a lovely little boy. Lots of love to you all, Moe x

Posted by Tracey Austin Tue, December 15, 2015 17:42:03

This is a fantastic way of raising awareness of the awful disease. You are both very strong and very brave for allowing your private sadness to be read by so many. My heart is with the whole family and I will be praying for Cian xx

Posted by Diane Tue, December 15, 2015 16:50:58

It's pay day on Friday so the first thing on my list is to donate. If only money would cure Cian you could have all mine. Stay strong xxx

Posted by Helen Tue, December 15, 2015 16:40:12

It's good that you are letting everyone into your private family's heartache I know that Cian is strong.

Posted by Cathy Tue, December 15, 2015 16:14:02

This is a brilliant way to raise awareness of what's going on. I am very proud of you both for the way you have been handling this. Cian is such an inspiration to us all with the way he is dealing with this himself. big hugs to you all. lots of love always x