Apologies that it has taken me a full week to post an update to the last blog.
Now that we have said goodbye to March, it certainly feels like Spring has arrived, and I am hoping that the season of growth and new life will be promising for Cian.
Cian has spent all last week in hospital, but he has got a little better and a little stronger each day.
As I was on holiday in West Wales with his brother and
sister, we decided to give Cian a treat and organised for mascots to visit the
ward on Easter Monday and spread a little bit of cheer.
Little AJ’s who were asked to surprise Cian with mascots on his birthday by the Ethan Perkins Trust Charity, had agreed to provide the mascots free of charge so all I had to do is make the arrangements with the ward and to pay for some treats to be dished out to all the patients who had to spend their Easter in Noah’s Ark.
They sent a Power Ranger, Princess Aurora, Bing and Chase.
Although we were not there to see Cian’s face (or the other children that benefited from the visit), we were able to catch up with photos posted on Facebook.
We got back on Thursday, a day early, in the hope that Cian would be allowed home on the Friday.
Unfortunately, due to a little fluctuations in Cian’s blood levels it was decided to keep Cian in on Friday night with a decision to go home to be made on Saturday morning.
During Friday Cian got to choose a new patchwork quilt that
were made by volunteers of the Project Linus.
It is an amazing creation, and Cian has certainly taken a shine to
Cian was also the first person on the ward to get a sneak peek at the impressive patchwork mosaic that the project have created. This has been framed and will adorn the corridor just outside the ward in the near future.
So I was on Cian duty Thursday and Friday nights. It sounds a little weird but I actually enjoyed getting back to what I now regard as normal. I slept better at the hospital than I did at the caravan; not because the caravan was not comfortable, but because I am now used to being a carer; and the routine of administering medicines, organising physio, ensuring Cian is having the right amount of feed at the right time is very reassuring.
Cian was given permission to leave on Saturday and mum took him home in the car, while I took Dylan and Bethany to watch Cardiff City play. Llanharan Primary School were again allocated free tickets and it is a welcome distraction for them. The only negative is that Cian would have loved to have gone, but again his positive attitude and understanding shone through. When he does have an opportunity to do some of the things he is missing out on it will be amazing!
While at home Cian enjoys doing the things he enjoys best like playing video games, and with his toys, and arguing with his siblings.
Cian will be transported back to the ward sometime on Monday morning. It is still the school holidays so Dylan and Bethany will be attending clubs to keep them occupied. Although there is lots to do on the ward, there is not enough to keep them adequately entertained, and they wouldn’t have the attention from me or their mum that they deserve. Also, we have now given up the accommodation we were allocated with LATCH due to it being very busy at the moment, so there is nowhere for us to spend the night at the hospital.
The clubs also provide them with a routine.
I’m hoping to provide more regular updates this week as we prepare for the start of chemo round 6 (out of 9).
We also have the Llanharan RFC Charity Match (Friday) and the Superhero Fun Day (Saturday) to look forward to. I’m hoping Cian will be feeling up to attending one or both of them, even if it is just for a short while.